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Emergencies and power outages

Be ready for the ER, power outages and storms: an emergency information form, a go-bag, and a plan for devices that need power.

Emergency visits

  1. Fill in an emergency information form and keep copies in the go-bag, on the fridge and on your phone.
  2. When you call 911, say your child has a medical device and what it is.
  3. Tell the ER team your child's baseline: what is normal for them is not normal for most children.
  4. Bring the go-bag, and ask the ER to call your complex care team.

The go-bag

  • Emergency information form and a medicine list
  • A day or two of medicines, feeds and formula
  • A backup trach and emergency trach kit, if your child has a trach
  • A spare feeding tube or extension sets
  • Chargers, cords and charged batteries
  • Suction, if your child uses it
  • Insurance cards and your care team's phone numbers

Power outages

  • Call your power company and ask to be listed as a medical priority customer. Many utilities have a form your doctor signs.
  • Know how many hours each device runs on battery. The power outage plan works it out.
  • Have a plan for where to go if the power is out longer than your batteries last.
  • Call 911 before batteries run low, not after.

Storms and disasters

  • Many counties keep a registry of people who need help in a disaster. Ask your county emergency management office.
  • Ask your supply company how they deliver during storms, and order extra before a storm.
  • Know which shelters have power for medical devices.
  • Keep two weeks of supplies when you can.

Good to know: this page is general information in plain language. It is not medical, legal or financial advice. Follow your care team's plan. In an emergency, call 911.

Last reviewed: November 2026. Programs, rules and phone numbers change. Check with the program named on this page. Report outdated or wrong information.