Find care
Every kind of care families with medical complexity use, from complex care clinics to equipment, with a search for each.
Search for care
Search runs on the Disability Atlas, our sister site, which holds every listing. Every listing shows its trust tier.
Kinds of care
Complex care clinics (search on Disability Atlas)
A medical home for children with many conditions: one team that coordinates the specialists, often at a children's hospital. Ask for a referral from your pediatrician or a specialist.
Specialty clinics (search on Disability Atlas)
Clinics for one condition or one kind of care: trach and ventilator clinics, cystic fibrosis, muscular dystrophy, spina bifida, bleeding disorders, cleft and craniofacial teams, aerodigestive and feeding programs.
Children's hospitals (search on Disability Atlas)
Inpatient care, emergency departments built for children, and most of the pediatric specialists.
Pediatric specialists (search on Disability Atlas)
Pediatric pulmonology, GI, nephrology, neurology, genetics, orthopedics, ENT, dietitians and more.
Home and private duty nursing (search on Disability Atlas)
Private duty nursing (PDN) and home health nurses who come to your home.
Medical day care (PPEC) (search on Disability Atlas)
Prescribed pediatric extended care (PPEC) centers: day programs with nurses and therapists. Only some states have them.
Medical equipment and supplies (search on Disability Atlas)
Durable medical equipment (DME) companies: ventilators, suction, oxygen, feeding pumps, hospital beds, wheelchairs and supplies.
Feeding and nutrition (search on Disability Atlas)
Feeding clinics, feeding therapists, dietitians, and formula and tube supply companies.
Communication devices (AAC) (search on Disability Atlas)
Speech devices, eye-gaze systems and the speech therapists who set them up.
Palliative and hospice care (search on Disability Atlas)
Palliative care teams and pediatric hospice, for comfort and quality of life alongside treatment.
Pediatric nursing and transitional care (search on Disability Atlas)
Pediatric skilled nursing and transitional care: short stays between hospital and home, and long-term nursing care.
Family support and lodging (search on Disability Atlas)
Ronald McDonald Houses and other lodging near hospitals, parent-to-parent groups and family navigators.
Who is usually on the team
- A medical home: a primary care doctor or complex care clinic that knows your child and coordinates the rest.
- Specialists: each one for a body system or condition.
- Therapists: physical, occupational, speech and feeding therapy, at a clinic, at home or at school.
- A supply company and a nursing agency: for the equipment, supplies and nurses at home.
- A care coordinator or case manager: often more than one (the clinic, the health plan, the state program).
- Family support: your state's Family-to-Family Health Information Center and parent-to-parent groups.
Questions to ask a clinic or agency
- Do you see children (or adults) with needs like my child's? How many?
- Do you take our insurance or Medicaid plan?
- Who do we call after hours?
- How long is the wait for a first visit?
- Will you send your notes to our medical home?
Last reviewed: November 2026. Programs, rules and phone numbers change. Check with the program named on this page. Report outdated or wrong information.